Sunday was an amazing day in Nash's development... After watching many children bend at the waist and pop right up over and over it hurt that our child could not. Nate has been working REALLY hard this summer with Nash on after he falls in the yard to put his "butt up" and stand up. Just last week Nate was thinking optimistically that in a month Nash would be able to do it. But on Sunday to our surprise Nash fell and worked really hard and stood up and began walking again. He did it three times... After that it was too hard for him, but hey PROGRESS!
Nate and I freaked out... Jumping up and down hugging and me of course crying. To many this seems soooooo simply and may not even seem like a milestone, but for Nash he moved a mountain in the backyard. It was AWESOME!!!
He also cracked several people up at church when... I picked him up and was saying shake shake.... I was being silly. We say... Shake Shake Shake... Shake your Bootie... Well I was not saying that, but Nash totally said SHAKE YOUR BOOTIE!!! As loud as possible. People cracked up... Not the choice of words at church but I guess it could have been worse.
It brings me great joy to share Nash's awesome success! He is growing up and definately beating odds.
Tuesday, July 28, 2009
Monday, July 20, 2009
Well... It's Been Awhile
Wow!! Haven't posted for some time... Seems like summer is flying... Just today I was thinking... "Nash's 3rd B-day is in a month and a half.. YIKES!!" His b-ady is 9-9-09 this year, which is pretty neat!
Let's see where did we leave off. We spent a week at Spirit Lake. One day of swimming weather and Nash and Nate took advantage of it. Nash drank some lake water and paid for it the next day. I about ran out of diapers!! Other then that we played cards, went fishing, walking, and of course ate WAY too much. Oh and I have to say it... Just to rub it into Great Gma Blair... Nate and I played as a team and we kicked BUTT!!! You see Gma does not like Nate and I playing together... She thinks we argue too much... Nate and I think it is because we always win!! hee hee!
After we left the lake we headed to mom and dad's where Nash rode the horse and enjoyed telling Sammy to... "Walk On!"
We drove back CR with mom and dad for the 4th of July weekend... We went fishing at the Kuehl Pond and the fish were biting... Practically jumping on the dock... We caught 109 fish. I think Gpa Blair had the most fun, but I will have to say I do not like fishing and that was fun! No touching worms or the fish... Thanks Dad! Nash not a fan of the fish!! Scared him a bit.
We loved the break from all the appointments and the house... It was wonderful for me to get away. Nash loved it too. Wish daddy could have stayed the whole week, but we are glad we got a few days with him.
We came back and got into our normal schedule of run from one appointment to another. During our running we went to Pella to see my college friend Rhonda and her baby. We stayed with Judy. It was a nice visit... We didn't even go up town... Didn't realize that until on the way home. On our way back to Pella we went to the opthomologist in Marshalltown. YUCK! Love the doctor... Hate the appointments. Nash is so bad now that we have to hold him down just to shine the light in his eyes. I feel horrible for him. He has been through so much medically that anyone who has a uniform on and touches him is not cool. It is stressful. Even haircuts are a major battle these days. This sheer terror lead to the discussion of when to have Nash's eye surgery. I would like to wait a year or so until we can get Nash calmed down. Dr Suh agreed. It is just one of those many choices we have had to make in Nash's life... Just not sure what is right...
Like sending him to school when he turns three... This is a battle I fight in my mind... I am leaning towards no and Nate yes. I am soooo torn.... 3 seems so young. He gets ill easy so it could be bad.... Plus I just worry about his safety, since he puts everything in he mouth.. (Example the n he choked on at the lake). I also want him to go for the social aspect and learning to follow istructions of the teacher... It's such a tough call. I am seeking any advice and opinions. I am asking everyone what they think... So far they are about 50/50 which isn't halping me much since I am in the same boat. We will just keep praying and see what happens.
Let's see... All this leads to this past weekend where Gpa & Gma Kuehl came to dinner Friday night and then on Sunday morning we went and watched mom and Jordanne skydive. Something not on my list of things to do before I die, but they had a Blast and it was fun watching them and getting to picnic with the entire family afterwards... At the picnic after getting on a fresh diaper Nash flirted with Emily... It was super cute and funny. Once again scaring me a little that he is like his uncle Evan.
This last month has been great. We have spent lots of time at several parks playing. Nash's balance is improving and his vocabulary is increasing. Swim lessons for therapy are going pretty good. He is using a spoon better and sometimes able to stab with the fork. He is learning better how to take on and off his clothes. Each step is a process that requires lots of work and creativity. Someday he will get it and life will be a little easier, however we know we will have new battles to fight... Likee School Bullies and school and other medical decisions we will be faced with in the future. All in all we are learning a lot along the way and are SOOOOO thankful that God blessed us with Nash. I just look at him sometimes in amazement and other times he cracks me up. Kids are sooooo funny! "I love it!"
Let's see where did we leave off. We spent a week at Spirit Lake. One day of swimming weather and Nash and Nate took advantage of it. Nash drank some lake water and paid for it the next day. I about ran out of diapers!! Other then that we played cards, went fishing, walking, and of course ate WAY too much. Oh and I have to say it... Just to rub it into Great Gma Blair... Nate and I played as a team and we kicked BUTT!!! You see Gma does not like Nate and I playing together... She thinks we argue too much... Nate and I think it is because we always win!! hee hee!
After we left the lake we headed to mom and dad's where Nash rode the horse and enjoyed telling Sammy to... "Walk On!"
We drove back CR with mom and dad for the 4th of July weekend... We went fishing at the Kuehl Pond and the fish were biting... Practically jumping on the dock... We caught 109 fish. I think Gpa Blair had the most fun, but I will have to say I do not like fishing and that was fun! No touching worms or the fish... Thanks Dad! Nash not a fan of the fish!! Scared him a bit.
We loved the break from all the appointments and the house... It was wonderful for me to get away. Nash loved it too. Wish daddy could have stayed the whole week, but we are glad we got a few days with him.
We came back and got into our normal schedule of run from one appointment to another. During our running we went to Pella to see my college friend Rhonda and her baby. We stayed with Judy. It was a nice visit... We didn't even go up town... Didn't realize that until on the way home. On our way back to Pella we went to the opthomologist in Marshalltown. YUCK! Love the doctor... Hate the appointments. Nash is so bad now that we have to hold him down just to shine the light in his eyes. I feel horrible for him. He has been through so much medically that anyone who has a uniform on and touches him is not cool. It is stressful. Even haircuts are a major battle these days. This sheer terror lead to the discussion of when to have Nash's eye surgery. I would like to wait a year or so until we can get Nash calmed down. Dr Suh agreed. It is just one of those many choices we have had to make in Nash's life... Just not sure what is right...
Like sending him to school when he turns three... This is a battle I fight in my mind... I am leaning towards no and Nate yes. I am soooo torn.... 3 seems so young. He gets ill easy so it could be bad.... Plus I just worry about his safety, since he puts everything in he mouth.. (Example the n he choked on at the lake). I also want him to go for the social aspect and learning to follow istructions of the teacher... It's such a tough call. I am seeking any advice and opinions. I am asking everyone what they think... So far they are about 50/50 which isn't halping me much since I am in the same boat. We will just keep praying and see what happens.
Let's see... All this leads to this past weekend where Gpa & Gma Kuehl came to dinner Friday night and then on Sunday morning we went and watched mom and Jordanne skydive. Something not on my list of things to do before I die, but they had a Blast and it was fun watching them and getting to picnic with the entire family afterwards... At the picnic after getting on a fresh diaper Nash flirted with Emily... It was super cute and funny. Once again scaring me a little that he is like his uncle Evan.
This last month has been great. We have spent lots of time at several parks playing. Nash's balance is improving and his vocabulary is increasing. Swim lessons for therapy are going pretty good. He is using a spoon better and sometimes able to stab with the fork. He is learning better how to take on and off his clothes. Each step is a process that requires lots of work and creativity. Someday he will get it and life will be a little easier, however we know we will have new battles to fight... Likee School Bullies and school and other medical decisions we will be faced with in the future. All in all we are learning a lot along the way and are SOOOOO thankful that God blessed us with Nash. I just look at him sometimes in amazement and other times he cracks me up. Kids are sooooo funny! "I love it!"
Thursday, June 25, 2009
Hippo Therapy Cont...
My horse's name is Jasper!! "I love it." Nash often says this after he is done riding! The ladies on the sides are volunteers. The PT is in the back and a volunteer is leading the horse. It is a wonderful experience for him and has proved to help loosen his legs. It is called Miracles in Motion for a reason! It is truly amazing.Hippo Therapy
The summer of Hippo Therapy ended with Nash being asked to ride for a group of therapist with a theraputic trainer from CA. Nash LOVES riding. In fact today he cried the entire time... 35 minutes. I was going slightly nuts. He stopped the moment he sat on the horse. Not another peep out of him. Praise God! I was hoping he would behave since 20 plus people were watching and the trainer/therapist from CA was showing techniques and using Nash. He did GREAT!
I took some pictures last week and thought I would share. Hipp Therapy is AWESOME for Nash. His legs get a great stretch and he sits straighter on the horse then anywhere else. It amazes me. We have a little cowboy in our midst.
Tomorrow we head for Spirit Lake. Yeah a vacation. Nate gets to come for some of it which is good. We are looking forward to getting away.
Wednesday, June 3, 2009
Recent Pictures to go with post below!!
Edible Playdough!! Yum!! Entertainment for at least an hour!! Way to go mom!!
Little hard to see, but look closely that that is Me... Nash on Shamrock... My first ever horse ride! Now I am a REAL Cowboy!! Yeee Haw!!!
This is the life!! Chilling, wathing a video and having a snack, while mom waits on me!!Random Updates!! It's been awhile!
Yeah... Been pretty bad about updating!! Been a little crazy around here... After the hospital, we actually got away from home a couple times!! Yippee! Nash and I went to Pella for a couple days. Great visit! Nash asked everyone for something to eat while visiting various people's houses. Cookies, Crackers, and Cake... Everyone was happy to feed him and HE LOVED IT! Sugar high for a couple days. He got a rude awakening when he got home. No sweets!
Then off to Lake City for Jordanne's graduation party where Nash got to ride Sammy, Jordanne's horse! Nate got to go with us since he doesn't work Sundays and it was Memorial day. Casey rode along and she might not want to ride with the Crazy Kuehls again!! It was great to be home. Nash even got to ride in the skid loader with grandpa and sleep with grandma while Nate and I want to a bed and breakfast. Yep... Made it one night without Nash!
Then we went to Honey Creek Resort with Gpa and Gma Kuehl for two nights. We biked and swam a lot! Nash walked the halls and loved the water. He was in HOT TUB HEAVEN! Now says Hot tub and water pretty much every day!
So we traveled A LOT in May... It was wonderful! So great to get out of the house. Breath fresh air and let Nash see the world. He loved every minute of it. He loves going "Bye bye" as he calls it.
He is trying to talk more and is walking at times up to 50 steps. That is on a good day, but it is WONDERFUL!
He says... "I love it!"; "I have sharp teeth" (from his new favorite book)!. "Stuck a feather in his hat and called it macaroni" Yankee Doodle is his new fav song. "I'm going to tickle!!" (when I am going to tickle him he says it for me!) "I love you..." Ahhhh I LOVE this one! He also says parts of his prayers, and loves singing parts of old country songs with Nate. Basically Nash fills in words here and there. Very funny!
He can say his ABCs all by himself, count to 20, count to 10 in spanish, and can identify all ABC and numbers to 10. Shapes and 8 to 10 colors. He is doing well in academics and LOVES learning new things. He struggles in creative play. Wants nothing to do with it. We try, but books and music are more his thing. Hoping and praying that his brain develops in that area. Still real orally fixated on things, which is for babies. He still explores his new environment and new items with his mouth. Hopefully he kicked that before school or he is going to get lots of unwanted germs! YUCK!
Eye patching is down to 2 to 4 hours a day and holding off on surgery in July for now. He is indeed using his right eye... We knew it and his new eye doc agrees! SWEET.... I love when doctor listen!
Nash had HippoTherapy today and loved riding the horse once again. He even got to ride a speedy horse. Basically rode a little bigger horse with a little faster walk. He starts aquatic therapy next week. I have a feeling he is going to Love it!!
I better be off to bed. Another busy day awaits us. We are very happy for this great weather and the freedoms of outside. We have really been stepping back and looking at all the little things in life this last month that God has blessed us with and for the first time in my life I have really focused on the beauty of spring and all the new life and fresh air. Wow God is good!
One step at a time... Moving forward and SOOOO thankful that God gave us Nash! I look at him often with tears of joy in my eyes and think just how wonderful it is to have such a blessing who has made me slow down, step back, and take nothing for granted. The little things in life are amazing. God often shows me through Nash. I have never seen so much love, grace, peace, joy, and determination in one person as I do our son. I am sooo incerdiable thankful for him.
Then off to Lake City for Jordanne's graduation party where Nash got to ride Sammy, Jordanne's horse! Nate got to go with us since he doesn't work Sundays and it was Memorial day. Casey rode along and she might not want to ride with the Crazy Kuehls again!! It was great to be home. Nash even got to ride in the skid loader with grandpa and sleep with grandma while Nate and I want to a bed and breakfast. Yep... Made it one night without Nash!
Then we went to Honey Creek Resort with Gpa and Gma Kuehl for two nights. We biked and swam a lot! Nash walked the halls and loved the water. He was in HOT TUB HEAVEN! Now says Hot tub and water pretty much every day!
So we traveled A LOT in May... It was wonderful! So great to get out of the house. Breath fresh air and let Nash see the world. He loved every minute of it. He loves going "Bye bye" as he calls it.
He is trying to talk more and is walking at times up to 50 steps. That is on a good day, but it is WONDERFUL!
He says... "I love it!"; "I have sharp teeth" (from his new favorite book)!. "Stuck a feather in his hat and called it macaroni" Yankee Doodle is his new fav song. "I'm going to tickle!!" (when I am going to tickle him he says it for me!) "I love you..." Ahhhh I LOVE this one! He also says parts of his prayers, and loves singing parts of old country songs with Nate. Basically Nash fills in words here and there. Very funny!
He can say his ABCs all by himself, count to 20, count to 10 in spanish, and can identify all ABC and numbers to 10. Shapes and 8 to 10 colors. He is doing well in academics and LOVES learning new things. He struggles in creative play. Wants nothing to do with it. We try, but books and music are more his thing. Hoping and praying that his brain develops in that area. Still real orally fixated on things, which is for babies. He still explores his new environment and new items with his mouth. Hopefully he kicked that before school or he is going to get lots of unwanted germs! YUCK!
Eye patching is down to 2 to 4 hours a day and holding off on surgery in July for now. He is indeed using his right eye... We knew it and his new eye doc agrees! SWEET.... I love when doctor listen!
Nash had HippoTherapy today and loved riding the horse once again. He even got to ride a speedy horse. Basically rode a little bigger horse with a little faster walk. He starts aquatic therapy next week. I have a feeling he is going to Love it!!
I better be off to bed. Another busy day awaits us. We are very happy for this great weather and the freedoms of outside. We have really been stepping back and looking at all the little things in life this last month that God has blessed us with and for the first time in my life I have really focused on the beauty of spring and all the new life and fresh air. Wow God is good!
One step at a time... Moving forward and SOOOO thankful that God gave us Nash! I look at him often with tears of joy in my eyes and think just how wonderful it is to have such a blessing who has made me slow down, step back, and take nothing for granted. The little things in life are amazing. God often shows me through Nash. I have never seen so much love, grace, peace, joy, and determination in one person as I do our son. I am sooo incerdiable thankful for him.
Friday, May 8, 2009
Ahhhh like his second home..
I am beginning to think Nash believes hospitals are his second home. I'd like it a lot more if he choose a five star hotel, but I guess this will do.
This has been a rough week at the Kuehl house... Sunday night Nash came down with a fever... Over 103*. I took him to the doctor on Monday... Not his normal doctor, because he was booked... Anyway apparently kids had been coming in with fevers that lasted for three to four days so Nash should just wait it out....
After three days of fevers over 101 and as high as 104.5... I was struggling to wait it out... After taking off his diaper I noticed blood in his urine. His temp was 104.4. We zoomed to ER on Wednesday Night at 7 PM... Returning home Thursday AM about midnight... Nash had been diagnoised with pneumonia, given IV and sent home... I wasn't thrilled, but figured the docs know best....
Thursday his temp was down, but cough proceeded to get worse... He no longer had tears. would not eat or drink and had no BMs/stools (medical terms) (poops, my term) since Monday. I made the executive decision.... Back to ER. He coughed and thre up on the way there so when i got there I was pretty much in tears. Surprised they didn't admit me to the mental ward.
Dehydrated and coughing like a madman for over 4 hours in ER Nash was admitted to St Lukes Peds. From what I saw riding on my back with Nash on my chest it looks to be a nice place!! Not my first ceiling view of a hospital with Nash... Only last time he was still inside me!
since being admitted Nash was diagnosed with walking pneumonia ( I can hardly spell is so knowing what it means... hmmmm viral I guess... about all I know... Still puzzeled with the spelling). They (Docs) think a urinary tract infection is to blame for the bacteria and white blood cells and red blood cells in his urine.
As of today (Friday) Nash will still not eat or drink and is coughing a lot. They are keeping him until he drinks and eats again and isn't coughing as much. Temp is down to almost normal so that is good news. He only wants his Mommy, which in a way makes me feel great, but on the other hand we have seen a lot of each other this week, so prying him off me to type a quick message while he sleeps is nice. I sit here and watch him cough and wish it was me... Wish I were sick and he was down tearing around this room and getting into everything. He has gotten into nothing this week. Funny, but I miss picking up after him!
While Nash is having a bad week. Nate is sick as well. Probably the worse I have seen him. He is not coping well and is seeing a doctor today. Yep running up those medical bills this week!! FUN FUN!
Prise God that I have not got sick... I hope not too. I have had about 15 to 20 hours of sleep this week so I am running on E. I think I am earning my Mother's Day this week!
I am glad we are here I was sooooo scared a few times this week. Felt so helpless. Once again understanding more about those strong ties a mother has to her child(ren). Amazing how much you hurt when they hurt, feel joy when they feel joy, and just how much you can love!
For all you moms out there... Happy Mother's Day!!
hope to spend my Mother's Day with Nash at home and healthy.... Hopefully he feels better today and eats and drinks something so maybe we can go home tomorrow! We'll see.
Reporting from Nash's second home thus far in life... A Hospital room. Someday I've got to convince him hotels are WAY better!
Jayme
(Thanks Casey for all your help, breakfast, lunch, and your computer). She's SOOOOO Awesome!
This has been a rough week at the Kuehl house... Sunday night Nash came down with a fever... Over 103*. I took him to the doctor on Monday... Not his normal doctor, because he was booked... Anyway apparently kids had been coming in with fevers that lasted for three to four days so Nash should just wait it out....
After three days of fevers over 101 and as high as 104.5... I was struggling to wait it out... After taking off his diaper I noticed blood in his urine. His temp was 104.4. We zoomed to ER on Wednesday Night at 7 PM... Returning home Thursday AM about midnight... Nash had been diagnoised with pneumonia, given IV and sent home... I wasn't thrilled, but figured the docs know best....
Thursday his temp was down, but cough proceeded to get worse... He no longer had tears. would not eat or drink and had no BMs/stools (medical terms) (poops, my term) since Monday. I made the executive decision.... Back to ER. He coughed and thre up on the way there so when i got there I was pretty much in tears. Surprised they didn't admit me to the mental ward.
Dehydrated and coughing like a madman for over 4 hours in ER Nash was admitted to St Lukes Peds. From what I saw riding on my back with Nash on my chest it looks to be a nice place!! Not my first ceiling view of a hospital with Nash... Only last time he was still inside me!
since being admitted Nash was diagnosed with walking pneumonia ( I can hardly spell is so knowing what it means... hmmmm viral I guess... about all I know... Still puzzeled with the spelling). They (Docs) think a urinary tract infection is to blame for the bacteria and white blood cells and red blood cells in his urine.
As of today (Friday) Nash will still not eat or drink and is coughing a lot. They are keeping him until he drinks and eats again and isn't coughing as much. Temp is down to almost normal so that is good news. He only wants his Mommy, which in a way makes me feel great, but on the other hand we have seen a lot of each other this week, so prying him off me to type a quick message while he sleeps is nice. I sit here and watch him cough and wish it was me... Wish I were sick and he was down tearing around this room and getting into everything. He has gotten into nothing this week. Funny, but I miss picking up after him!
While Nash is having a bad week. Nate is sick as well. Probably the worse I have seen him. He is not coping well and is seeing a doctor today. Yep running up those medical bills this week!! FUN FUN!
Prise God that I have not got sick... I hope not too. I have had about 15 to 20 hours of sleep this week so I am running on E. I think I am earning my Mother's Day this week!
I am glad we are here I was sooooo scared a few times this week. Felt so helpless. Once again understanding more about those strong ties a mother has to her child(ren). Amazing how much you hurt when they hurt, feel joy when they feel joy, and just how much you can love!
For all you moms out there... Happy Mother's Day!!
hope to spend my Mother's Day with Nash at home and healthy.... Hopefully he feels better today and eats and drinks something so maybe we can go home tomorrow! We'll see.
Reporting from Nash's second home thus far in life... A Hospital room. Someday I've got to convince him hotels are WAY better!
Jayme
(Thanks Casey for all your help, breakfast, lunch, and your computer). She's SOOOOO Awesome!
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