Tuesday, July 28, 2009

He did it!!!

Sunday was an amazing day in Nash's development... After watching many children bend at the waist and pop right up over and over it hurt that our child could not. Nate has been working REALLY hard this summer with Nash on after he falls in the yard to put his "butt up" and stand up. Just last week Nate was thinking optimistically that in a month Nash would be able to do it. But on Sunday to our surprise Nash fell and worked really hard and stood up and began walking again. He did it three times... After that it was too hard for him, but hey PROGRESS!

Nate and I freaked out... Jumping up and down hugging and me of course crying. To many this seems soooooo simply and may not even seem like a milestone, but for Nash he moved a mountain in the backyard. It was AWESOME!!!

He also cracked several people up at church when... I picked him up and was saying shake shake.... I was being silly. We say... Shake Shake Shake... Shake your Bootie... Well I was not saying that, but Nash totally said SHAKE YOUR BOOTIE!!! As loud as possible. People cracked up... Not the choice of words at church but I guess it could have been worse.

It brings me great joy to share Nash's awesome success! He is growing up and definately beating odds.

Monday, July 20, 2009

Well... It's Been Awhile

Wow!! Haven't posted for some time... Seems like summer is flying... Just today I was thinking... "Nash's 3rd B-day is in a month and a half.. YIKES!!" His b-ady is 9-9-09 this year, which is pretty neat!

Let's see where did we leave off. We spent a week at Spirit Lake. One day of swimming weather and Nash and Nate took advantage of it. Nash drank some lake water and paid for it the next day. I about ran out of diapers!! Other then that we played cards, went fishing, walking, and of course ate WAY too much. Oh and I have to say it... Just to rub it into Great Gma Blair... Nate and I played as a team and we kicked BUTT!!! You see Gma does not like Nate and I playing together... She thinks we argue too much... Nate and I think it is because we always win!! hee hee!

After we left the lake we headed to mom and dad's where Nash rode the horse and enjoyed telling Sammy to... "Walk On!"

We drove back CR with mom and dad for the 4th of July weekend... We went fishing at the Kuehl Pond and the fish were biting... Practically jumping on the dock... We caught 109 fish. I think Gpa Blair had the most fun, but I will have to say I do not like fishing and that was fun! No touching worms or the fish... Thanks Dad! Nash not a fan of the fish!! Scared him a bit.

We loved the break from all the appointments and the house... It was wonderful for me to get away. Nash loved it too. Wish daddy could have stayed the whole week, but we are glad we got a few days with him.

We came back and got into our normal schedule of run from one appointment to another. During our running we went to Pella to see my college friend Rhonda and her baby. We stayed with Judy. It was a nice visit... We didn't even go up town... Didn't realize that until on the way home. On our way back to Pella we went to the opthomologist in Marshalltown. YUCK! Love the doctor... Hate the appointments. Nash is so bad now that we have to hold him down just to shine the light in his eyes. I feel horrible for him. He has been through so much medically that anyone who has a uniform on and touches him is not cool. It is stressful. Even haircuts are a major battle these days. This sheer terror lead to the discussion of when to have Nash's eye surgery. I would like to wait a year or so until we can get Nash calmed down. Dr Suh agreed. It is just one of those many choices we have had to make in Nash's life... Just not sure what is right...

Like sending him to school when he turns three... This is a battle I fight in my mind... I am leaning towards no and Nate yes. I am soooo torn.... 3 seems so young. He gets ill easy so it could be bad.... Plus I just worry about his safety, since he puts everything in he mouth.. (Example the n he choked on at the lake). I also want him to go for the social aspect and learning to follow istructions of the teacher... It's such a tough call. I am seeking any advice and opinions. I am asking everyone what they think... So far they are about 50/50 which isn't halping me much since I am in the same boat. We will just keep praying and see what happens.

Let's see... All this leads to this past weekend where Gpa & Gma Kuehl came to dinner Friday night and then on Sunday morning we went and watched mom and Jordanne skydive. Something not on my list of things to do before I die, but they had a Blast and it was fun watching them and getting to picnic with the entire family afterwards... At the picnic after getting on a fresh diaper Nash flirted with Emily... It was super cute and funny. Once again scaring me a little that he is like his uncle Evan.

This last month has been great. We have spent lots of time at several parks playing. Nash's balance is improving and his vocabulary is increasing. Swim lessons for therapy are going pretty good. He is using a spoon better and sometimes able to stab with the fork. He is learning better how to take on and off his clothes. Each step is a process that requires lots of work and creativity. Someday he will get it and life will be a little easier, however we know we will have new battles to fight... Likee School Bullies and school and other medical decisions we will be faced with in the future. All in all we are learning a lot along the way and are SOOOOO thankful that God blessed us with Nash. I just look at him sometimes in amazement and other times he cracks me up. Kids are sooooo funny! "I love it!"