This past Wednesday we went into the dealership to pick up Nate after work to head to Shriners in MN. While waiting for daddy to get off work Nash got a few bug bites. We arrrived in MN at 10:30 PM and checked into our hotel. Slept great and went for a swim in the morning. Then off to the Mall of America for lunch and a few rides before his afternoon appointment at Shriners. Lunch went well until Nash choked and threw up his entire lunch of choc. milk and mac and cheese. Thank you Famous Dave's for having a roll of papertowels at each table!! Since we were in the mall Nash got a new outfit. The one he was wearing was ummmm disgusting!! Survived that little episode... In new clothes and to Camp Snoopie where Nash would ride his first rides. Three rides in the bug bite on Nash head grew to the size of a golf ball... Not kidding. Right between his eyes on his forehead was this huge lump that turned red...
I was in a small panic... Never have I ever seen a bug bite do that. Stopped by security... They said go to ER.... Called shriners and told them what was going on and asked if we could just come there and they said no, but here are the directions to ER... So we get to ER and check in... One hour later sitting in the waiting room and not been seen we start thinking this is NUTS!! We are going to miss the shriners appointment we drove five hours too. So I go to the front desk ans ask how muhc longer before we see a doctor... They said at least two more hours because they were swamped. As we look around and see people in masks with the flu, a kid with a broken arm, and about 20 other people we call Shriners again and ask them if the nurse could at least look at it, since ER was getting us no where. The say yes so we leave ER and head to shriners... I am calming down. We arrive at Shriners 2 minutes late for our appointment. Everyone there shocked to see such a big bump on Nash head. Nate drives around MN looking for a pharmacy for some medication for Nash... Nurse looked at it and the swelling had begun to go down. Only the size of a bouncy ball at this point. She said it must have been a reaction. We were like yeah, but still cannot ffigure out why it took 18 hours for the reaction... Maybe something to do with the rides we were on... So we see one doc and he is impressed with Nash's development and how well the casting has worked for Nash's walking. Nash's hip and spine x-rays looked well. The doc did want Nash in foot braces so we were off to get fit for those...
You see at Shriners they make the braces right there... Over night... It is sooooo awesome. It would take us weeks to get them, but overnight at Shriners. Such a blessing!
Headed back to the hotel for a swim and then off to bed since Nash had another appointment the following morning. The neurologist was also happy with Nash's improvement and way impressed that Nash reads at least 12 words... Yeah you read it right Nash is learning to read. He loves it! Music and books... Oh and swimming... Nash loves the pool! The doctor said it would be good to take Nash swimming as much as possible... So we are going to look into that.
After that appointment we went to try on the braces. Took about and hour and a half to get them right, but they fit and are working well. We are very excited. We had another great experience there and go back in six months.
We drove home and the only funny thing is we were looking for five minutes trying to figure out this terrible smell only to notice the truck in front of us carrying dead animals. We notice it right before the merge right sign... Road construction for the next 8 miles. Nate sped around just in time... God was definately with us... I was gagging. It was nasty! We then laughed sooooo hard. Hello, how did it take us that long to figure it out... Right ahead of us... Hmmmm driver were you looking at the road??? Must not have been if he did not notice it!!! Ahhh,... I am sure way funnier to us. But it was one of those had to be there moments.
Typically trip... Had some unexpected and unwanted adventure... But again survived. The neat thing about it all was... Nash on the way to ER and in ER sang... Jesus loves me and Our God is an awesome God over and over... We saw God right through Nash and our panic and stress. Like Nash knew... It was all going to be ok and it was!! Praise God. The bump is now completely gone, which is wonderful! It grew right in front of my eyes... Very strange and scary as parents!
We had great news about his development. They kept saying the brain is damaged in some areas, but makes up for it in others... We know that is God... See Nash will not likely ever be able to play sports, but he has the gift to memorize songs and sing them. He also is very good educationally, which are all gifts and talants God gave Nash and we are sooooo thankful for those.
Once again our child taught us lessons... We can only hope we teach him as half as much as he teaches us!!
Monday, September 21, 2009
Thursday, September 10, 2009
I'M THREE
Nash had his birthday on 9-9-09! He started off the day by laying in bed and speaking spanish (he has a spanish video he just loves... Uses about 12 words on a regular basis) I walk in and say, "Good Morning & HAPPY Birthday!!" He smiles and says, "What are you doing?" I said, "I was working on the computer... What are you doing?" He responds, "Spanish." Amazed I carry on... "What do you want for breakfast?" He says, "Birthday Cake!" I say, "OK, What to drink?" He says "Milk."
I knew right then and there that this is going to be a good year!! That was a first ever conversation that went beyond me asking him a question and he giving a short answer. Amazing!!
He ate cake... I figured.. He talked and he only turns 3 once... Cake for breakfast once a year is not going to kill him. I let him choose meals and activities all day... Besides speech and Nate choose dinner... Anyway he wanted chicken nuggets.. Ate all four and a small fry and milk. Mowed it... I kept looking around to see if he dropped any... Nope!
He wanted a ride on the mower so we drove it around the yard. Played paino, swang, read, and of course watched a few videos.
We went to the Japanese. Osaka... They made it in front of you. Nate wanted to go there, Brice had never been to a Japanese place, and Nash well he wanted Chinese, but loved Japanese. The flames got real high and Nash leaned back and yelled "HOT!!!" Everyone cracked up. He ate like a champ... Seriously we have never seen him eat soooo much... He had steak, salad, soup, rice, candy, more steak, crackers, a choc milk, glass of water, and a cooked banana. Brice was scared to ride home with us for fear Nash would get sick in the car. He just kept eating... We figured he must be trying to gain weight for his doc apt tomorrow.
He had casts on his feet for three weeks. It was suppose to be 4 weeks, but he did soooo well they decided to take them off. For the first time we saw and still do see Nash walking on his flat feet. Not on his toes. He even stands in the middle of the room. It is sooooo neat! The therapist are shocked at how well it is working. The alternative is surgery and we as parents do not feel that is a good option for such a young child. When Nash is older and he can decide and has stopped growing will will proceed if need be, but for now this is amazing. His muscles are semi loose for the first time. We will likely be casting for a month every four to five months. Which is ok by us since we are seeing results.
When asked Nash responds the the following questions... How old are you? He says, "I'm 3"
What is your favorite color? "Yellow" What is your favorite animal? "Dog" We had to work on I'm 3 and him saying his name "Nash Kuehl." But the favorite color and animal were all him. Thinking he is smarter then we all know, but just struggles to verbalize things.
Yes, it has been forever since I blogged... Busy I guess. Summer has gone sooooo fast... We have had our ups and downs, but keep moving forward knowing God is right there holding us.
We did go camping this weekend... Nash loved it... Of course just in the back yard, but we had a blast. I personally loved it. Toilet and shower near by. Nash woke up in the middle of the night and said, "We're camping!!" and went right back to sleep. Cracked us up. We love hearing him talk. Music to our ears. Silent for so long and hearing words and words with meaning is so awesome! We are just soooo thankful he is talking. It pains me to know other parents whom will never hear there children talk. We just Praise God for progress!
We had his b-day party this weekend. Fun, but he was a little naughty... Cried during the party. He did dig into his Elmo cake, but wiped more on Nate then he put in his mouth. Probably better that way... Less of a sugar high!
We decided against school this fall. I am feeling really good about that. The school was very understanding and helpful. Principle has a son on an IEP so she is WONDERFUL!! He will continue Speech once a week with the AEA. Once a week at Witwer Children's Therapy and also OT and PT once a week there too. So we have a few less appointments, but still real busy.
We go to Shriners Hosp in MN next week. Curious to see what they feel his progress is. Always a little nervous too. Nash will be excited to swim at the hotel pool!
Well I need to run... I've got lots of work to do before he gets up from his nap.
Hope you all had a wonderful summer...
I have some pictures, but they won't load... My camara is broke... I will be asking for a new one for Christmas!! Good thing Aunt Jordanne takes lots of pictures!
I knew right then and there that this is going to be a good year!! That was a first ever conversation that went beyond me asking him a question and he giving a short answer. Amazing!!
He ate cake... I figured.. He talked and he only turns 3 once... Cake for breakfast once a year is not going to kill him. I let him choose meals and activities all day... Besides speech and Nate choose dinner... Anyway he wanted chicken nuggets.. Ate all four and a small fry and milk. Mowed it... I kept looking around to see if he dropped any... Nope!
He wanted a ride on the mower so we drove it around the yard. Played paino, swang, read, and of course watched a few videos.
We went to the Japanese. Osaka... They made it in front of you. Nate wanted to go there, Brice had never been to a Japanese place, and Nash well he wanted Chinese, but loved Japanese. The flames got real high and Nash leaned back and yelled "HOT!!!" Everyone cracked up. He ate like a champ... Seriously we have never seen him eat soooo much... He had steak, salad, soup, rice, candy, more steak, crackers, a choc milk, glass of water, and a cooked banana. Brice was scared to ride home with us for fear Nash would get sick in the car. He just kept eating... We figured he must be trying to gain weight for his doc apt tomorrow.
He had casts on his feet for three weeks. It was suppose to be 4 weeks, but he did soooo well they decided to take them off. For the first time we saw and still do see Nash walking on his flat feet. Not on his toes. He even stands in the middle of the room. It is sooooo neat! The therapist are shocked at how well it is working. The alternative is surgery and we as parents do not feel that is a good option for such a young child. When Nash is older and he can decide and has stopped growing will will proceed if need be, but for now this is amazing. His muscles are semi loose for the first time. We will likely be casting for a month every four to five months. Which is ok by us since we are seeing results.
When asked Nash responds the the following questions... How old are you? He says, "I'm 3"
What is your favorite color? "Yellow" What is your favorite animal? "Dog" We had to work on I'm 3 and him saying his name "Nash Kuehl." But the favorite color and animal were all him. Thinking he is smarter then we all know, but just struggles to verbalize things.
Yes, it has been forever since I blogged... Busy I guess. Summer has gone sooooo fast... We have had our ups and downs, but keep moving forward knowing God is right there holding us.
We did go camping this weekend... Nash loved it... Of course just in the back yard, but we had a blast. I personally loved it. Toilet and shower near by. Nash woke up in the middle of the night and said, "We're camping!!" and went right back to sleep. Cracked us up. We love hearing him talk. Music to our ears. Silent for so long and hearing words and words with meaning is so awesome! We are just soooo thankful he is talking. It pains me to know other parents whom will never hear there children talk. We just Praise God for progress!
We had his b-day party this weekend. Fun, but he was a little naughty... Cried during the party. He did dig into his Elmo cake, but wiped more on Nate then he put in his mouth. Probably better that way... Less of a sugar high!
We decided against school this fall. I am feeling really good about that. The school was very understanding and helpful. Principle has a son on an IEP so she is WONDERFUL!! He will continue Speech once a week with the AEA. Once a week at Witwer Children's Therapy and also OT and PT once a week there too. So we have a few less appointments, but still real busy.
We go to Shriners Hosp in MN next week. Curious to see what they feel his progress is. Always a little nervous too. Nash will be excited to swim at the hotel pool!
Well I need to run... I've got lots of work to do before he gets up from his nap.
Hope you all had a wonderful summer...
I have some pictures, but they won't load... My camara is broke... I will be asking for a new one for Christmas!! Good thing Aunt Jordanne takes lots of pictures!
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