Good Morning!!

Please send some prayers our direction as tomorrow we head off to the opthomologist and then to Shriners Hospital in MN where Nash will be seen by several doctors, surgoens, and nuerologist. He will also go to PT and OT at the hospital. A two day evaluation.

We will hopefully get to the bottom of a lot of concerns. Nash has night terrors and shakes, which could apparently be seizures. We discussed these occurances with his doc in CR and in DM, but they said nothing. His PT and OT and Speech therapist on the other hand think differently. So hopefully we find out. We pray that he is not having seizures.

We recently found out the Nash is having stiffness in his arms and wrists and might have to have braces made for them too. He does wear a leg brace at night and during naps. He is suppose to wear his AFO at that time too, but it is hurting his foot. We think they might say he will have to wear an AFO at allo times, but not sure.

We have made out lists of questions... Hoping to get some answers... Yet knowing there is no way really for them to predict how Nash will be when he is older.

It seems as though recently we have been finding out a lot more about Nash... Most of it hard to take. More therapies to do at home... We keep real busy. Sometimes I struggle because I just want Nash to be able to be a kid. So we schedule those times into Nash's schedule... Fun activities and time for Nash to do what he wants... Which normally occurs while I am on the phone, cooking, or busy. They little guy is on a mission to destroy the house...

Nash's development is critical the first 5 years, so we are trying to get him to do everything he can!!

I will post when we return from Shiners. Also I hope to post a schedule of Nash's day in the near future... Just so you can have a peek into his world.

Enjoy this warm weather!! Thank you for all your prayers and support. I am both thankful and nervous about the trip. I am taking notes, because I know I will be overwhelmed!

Love and blessings
Jayme