Ahhh... Finally a Moment

These days it has been getting harder and harder to find that moment when I can sit down and update our Blog.

Nash has been phasing out naps... So that two hours a day where I did my work for the IH Waiver is gone... Trying to find other opportunities to sneak away to the computer and do work. Admitting that it often becomes video time for Nash... Yes, the major "No No" according to many articles... Do not let your TV become your child's baby-sitter... Well, how about educational videos?? Well, they are from time to time and frankly some days help me keep my sanity.

Some days I find my son sitting on my lap watching U-Tube videos on how to count to 50, colors and shapes, days of the week, months of the year, and his favorite "Our God is an Awesome God," while I am on the phone with families. Having to say, while is is slightly difficult it has been working in several ways... He can count to 50 and the families I am talking to have no idea my child is on my lap while I am working.

Nate often calls me "Super Mom." Juggling a million things at once doesn't make me feel like a super mom, but super inane sometimes... Reality is some nights I sit down with Nash falling to sleep in my arms around 8 PM and Nate is still at work and I do think... "WOW we accomplished a lot today." Then after thanking God for making it through my mind jogs to "whats on the agenda for tomorrow?"

Speaking to the many mothers I talk with whose childern have special needs I think they are all "Super Moms" the amount of stress dealing with doctors, insurance, DHS, paperwork, therapies, oh and of course caring for the child is down right nuts sometimes... Understanding it... Well, I have now realized it is impossible unless you are walking in the shoes. I find myself advocating for families and realizing I am fighting a giant Government. Often not on my to do list each day, because I am not even sure where to start... Yikes... Maybe someday!

Now for the real reason why you probably checkt our Blog updates!! Nash!! After Christmas I promise to get some pictures up... I asked for a new camera... Mine has not worked for months.

Nash is trying to talk more. Engaging in some short conversations. He for the most part answers simple questions. We just keep hoping and praying that his language will continue to develop so he can get out his thoughts instead of being frustrated. Little by little he says phases and this is making our lives a bit easier.

Walking... Pretty good... Up on the toes again... He is growing in more so his muscles get tighter as the bones grow. This makes him walk on his toes. Hence the reason for casting his legs at the beginning of Sept. Physical Therapist thought casting would occur three times a year for a month each... Now we see why. All this work now will hopefully prevent him from being wheelchair bound as he gets older. There are surgeries, however we do not feel cutting into Nash's legs or spine are the right answers. At least for now in his life... When he gets older and has opinions we will take those into consideration. For now we will do anything to prevent surgery... Cutting into the body always has some sort of negative side effect. Medications are similar, so we are trying the natural ways for now.

Nash has been a pretty happy little guy. Funny at times, which I LOVE!! Ah and his kisses he comes and gives me are the BEST thing ever!!

We are on what we call, "House Arrest" again this winter. Avoiding germs. Last year we tried minimal house arrest and it led to several colds and two vomitting flu bugs, and a hospital stay. The doctor felt with this year supposing to be the worst flu season ever to keep Nash at home. We agree! We also opted not to get the H1N1 shot, because of all the negative side affects. We are being very careful, taking probiotics and Vit D3. Hoping and praying that we avoid this flu season.

Yeah... If you haven't noticed we do LOTS of hoping and praying. Trying to avoid the worrying, which unfortunately comes with all children, but often more with childen who have special needs. Working so hard to help your child get where they are today, you want to avoid at all costs something that will set them back or cause them harm... That tends to bring ona little worry that you try to sqaush with prayers and faith!

Potty training... Sort of working on it... Many other people have said to wait or not to worry about it. Most people would be freaking out if their 3 year old was not going on the potty. Us... well thankful he knows what the potty is and that he is getting closer to being able to pull down his pants. Which not is super funny... When I go pee or Nate goes pee Nash says "P...ISSSSS." You're thinking... They taught him piss... No we did not! However, when we sit Nash down to try to go potty make the noise... "PSSSSS." Which Nash loves, however says "P..ISSSS." First time Nash did it was with me and I thought Nate taught him the word... Then Nate thought I did... Only to realize he said it was because of the noise I made.... Ahhh... super cute! But not what I was intending! We find ourselves having a quick chuckle and telling him "Good Boy for relating the noise with the activity." Then we make the noise correctly hoping that sooner then later he will pick it up!

Oh speaking of Good Boy.... Sometimes Nash tells us he is a "Good Boy" after doing something he knows we will say "Good Boy" to him... Example... Scooping his cereal on his own... After chewing a bit he says, "Good Boy!" Knowing we would say that to him. It is sooooo cute! Just makes us super thankful for progress!!

Fridays are Nate's day off and he and Nash went to drop something off at Gpa and Gma Kuehls... I hear they are home... Better go make lunch! Glad I finally had a moment....

Writing this Blog often helps me see how far Nash has come and how thankful we are to have such a wonderful blessing from God!